Validation, Documentation & Advocacy for Endometriosis & Adenomyosis

Your Pain Is Real. Your Story Matters.

Specialized advocacy and documentation support for endometriosis and adenomyosis warriors who are done with being dismissed.

What You’ve Been Through Is Not “Normal”

Years of gaslighting. Countless doctors. Being told that what you’re experiencing is “just bad periods.” We believe you, and we’re here to help you fight back with documentation that demands to be taken seriously.

“It’s just period pain”

Level 8-10 pain that makes you vomit, faint, or miss work is not normal. We’ll help you document the true severity of your symptoms in language that providers cannot dismiss.

“Have you tried yoga?”

You’ve tried everything. We’ll create a comprehensive treatment history that shows the extensive measures you’ve taken and why you need real medical intervention.

“Maybe it’s anxiety”

Your symptoms are physical, not psychological. We’ll help you push back against psychological dismissal with clear, clinical documentation of your physical symptoms.

“You’re too young for this”

Endometriosis doesn’t care about age. We’ll compile evidence and specialist guidelines that validate your experience regardless of your age or reproductive status.

“Just get pregnant”

Beyond the absurdity of this recommendation, your quality of life matters. We’ll help you advocate for treatment that prioritizes your daily functioning and pain relief.

“The ultrasound is normal”

Endo often doesn’t show on imaging. We’ll provide documentation about why negative imaging doesn’t rule out endometriosis and advocate for proper diagnostic procedures.

Advocacy Services Designed for Your Battle

Get the care, validation, and treatment you deserve.

Visit Prep Package

$295

Perfect for: Getting taken seriously at your next appointment

  • Symptom-prioritization worksheet (completed)
  • One-page appointment roadmap with priorities, talking points, strategic questions, conversation flow
  • Provider-pushback cheat sheet (three tailored redirect phrases)
  • Prep document delivered in PDF and editable format
  • One revision round within seven days
Start Here

Second Opinion Package

$295

Perfect for: Getting to an actual endo specialist

  • Concise medical history and treatment summary
  • Curated record set to share (up to 300 pages)
  • Tailored question list for second-opinion provider
  • Frame-setting cover letter to preserve current relationships
  • Decision worksheet for comparing recommendations
Get Your Referral

Insurance Appeal Letter

$295

Perfect for: Fighting for excision surgery coverage

  • Comprehensive insurance appeal letter for excision surgery
  • Supporting-evidence packet with medical literature on excision vs ablation
  • Medical-necessity argument referencing endometriosis treatment guidelines
  • Personalized question list for surgeons and insurance
  • Submission checklist and follow-up timeline
Fight for Surgery

Your Path to Proper Care

Initial Consultation

Share your story in a safe, validating space. We review your history and identify advocacy priorities.

Documentation Review

Analyze your medical records for dismissive language, gaps, and opportunities for correction.

Strategy Development

Create your personalized advocacy plan with specific scripts, letters, and documentation.

Resource Delivery

Receive your complete advocacy toolkit within 5-7 business days.

Follow-Up Support

30 days of email support for questions and appointment debriefs.

Common Questions

Is this medical advice?

No, we provide documentation and advocacy support, not medical advice. Our services help you communicate more effectively with your healthcare providers and advocate for appropriate care based on established medical guidelines and your documented experiences.

How do you understand endo/adeno so well?

Our team includes people with lived experience of endometriosis and adenomyosis, combined with expertise in medical documentation, patient advocacy, and healthcare navigation. We understand the unique challenges you face because we’ve faced them too.

Will this guarantee I get the treatment I want?

While we cannot guarantee specific outcomes, proper documentation and strategic advocacy significantly improve your chances of being taken seriously, getting appropriate referrals, and accessing necessary treatments. Our clients report feeling more confident and getting better responses from providers.

Can you help with insurance appeals?

Yes! Insurance appeals are one of our specialties. We provide templates, supporting documentation, and strategies for appealing denials for surgery, specialist care, medications, and other treatments. We know the language that insurance companies respond to.

What if my doctor gets offended?

A provider who gets offended by professional, documented advocacy is showing you they’re not the right provider for you. Our approach is firm but professional, focused on facts and established medical guidelines. Good doctors welcome informed, engaged patients.

Do you work with people still seeking diagnosis?

Absolutely. Many of our clients are still fighting for diagnosis after years of dismissal. We help document your symptoms, create compelling referral requests, and build the case for proper diagnostic procedures like diagnostic laparoscopy.

Is everything confidential?

Yes. We maintain strict confidentiality and HIPAA compliance. Your information is never shared without explicit consent, and all documents are delivered securely through our encrypted platform.

Can you help with workplace issues?

Yes, we offer workplace accommodation support including ADA requests, FMLA documentation assistance, and strategies for explaining your invisible illness to employers while protecting your privacy and rights.

Stories of Validation

“I’d been denied twice and was ready to check out of the healthcare system altogether. Working through my appeal with Carrie helped me understand what insurance companies actually need to hear, which isn’t just ‘I’m in pain’ but specific medical terminology and studies. My excision surgery was approved within three weeks of sending the appeal. I still can’t believe it worked.”

Erin, 35
Stage IV Endometriosis

“I used to basically shut down during doctor appointments. Having actual response scripts gave me confidence I never had before. When my PCP suggested weight loss again, I showed him my documented symptom patterns and asked for specific diagnostic tests. He actually ordered them. First time in years that someone took action instead of suggesting that my pain was somehow my fault.”

Mallory, 29
Adenomyosis warrior

“After almost a decade of rawdogging undiagnosed endo, I was shocked when the new specialist looked at my documentation and immediately said ‘looks to me like endometriosis.’ No questioning, no ‘have you tried…’ bs, just validation. The documentation we developed helped me present my case like a medical professional and finally someone saw me as believable.”

Sadie, 26
Diagnosed after 9 years

The Reason We Provide This Resource

This site was created to serve the countless people living with endometriosis or adenomyosis who’ve been dismissed, doubted, or left to manage complex pain alone. Too often, women’s symptoms are minimized, delayed, or misinterpreted. You deserve care that takes your pain seriously and believes in your potential for healing.

As part of PatientLead Health, this space offers focused guidance for endometriosis and adenomyosis advocacy. Our mission is clear: validate your experience, document your reality, and equip you with the tools to secure appropriate care.

You’re not imagining it and you’re not overreacting. You’re facing a serious, progressive disease that deserves serious medical attention. We’re here to help you get it.

Let’s Build Your Case Together

Stop accepting dismissal. Start insisting on proper care. Your journey to validation begins with a single step.

Questions? Email us: [email protected]

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